The input of people with lived experience of chronic pain and/or adverse childhood experiences is integral to CAPE’s work. CAPE has a very active Patient Advisory Group who contribute to and input on the ongoing research to ensure the work is relevant, sensitive, and focussed.
Our Patient Advisory Group consists of a number of people based in various parts of the UK. The national aspect of the group gives the research insight on patient care and experiences throughout the country, instead of being limited to a small area.
The Patient Advisory Group meet monthly to discuss the research and various other factors of the project. The feedback is then reported to the CAPE research team at separate research meetings, which the Patient Advisory Group members are also invited to partake in.
Aside from meetings, the Patient Advisory Group are also involved in CAPE conferences and other adjacent in-person events where their contributions are highlighted and promoted.
CAPE is dedicated to ensuring that each of the Patient Advisory Group members feel heard in all aspects of the project.
Below are a series of quotes direct from the Patient Advisory Group describing their involvement in CAPE.
Member #1 “Quote”
Member #2 “Quote”
Member #3 “Quote”